Huntington's Disease hope for cure everyday

[Scottyskis2]

#ICYMI
The Huntington's Disease Society of America Awards More Than $2 Million To Expand HDSA Centers of Excellence Network to Sixty-Seven Sites Across the US!

Full Story: https://hdsa.org/news/huntingtons-d...e-network-to-sixty-seven-sites-across-the-us/

#LetsTalkAboutHD #HuntingtonsDisease #HDSAFamily

 

[Scottyskis2]

https://instagram.com/stories/changehd_study/3042775362800930872?utm_source=ig_story_item_share&igshid=MDJmNzVkMjY=

 

[Scottyskis2]

Not me now but I will get to this point with this fucken terrible illness
We in the same HD Facebook page
"""can people please pray for me I really hate this disease I can't walk and getting very hard to speak I can't understand myself""""

 

[Scottyskis2]

This Week in #HuntingtonsDisease Research!
Read the latest post at https://hdsa.org/blog/

THIS WEEK
- Celebrate #RareDiseaseDay with HDSA on February 28th
- Teva Announces FDA Approval for Austedo-XR
- Survey on Digital Data Collection

#LetsTalkAboutHD #HDSAFamily

 

[Scottyskis2]

Huntington disease talking
#LetsTalkAboutHD with Kate Miner! To learn more about #HuntingtonsDisease & the #HDSAFamily, please visit HDSA.org.

 

[Scottyskis2]

Huntington disease video

On this episode of #Help4HDTV we talk with Kevin, AKA Bubba, about the impact of chorea. Don’t forget to subscribe to our YouTube channel
"On this episode of #Help4HDTV we talk with Kevin, AKA Bubba, about the impact of chorea. Don’t forget to subscribe to our YouTube channel

#Help4HD #Chorea #HD #HuntingtonsDisease #BubHasHD

#Help4HD #Chorea #HD #HuntingtonsDisease #BubHasHD

 

[Scottyskis2]

Here is an update from Prilenia. We are hopeful and continue to watch closely for new info.

#Prilenia #HD #HuntingtonsDisease #Help4HD #HIPE #ClinicalTrial #PhaseIII #ClinicalTrialUpdate

 

[Scottyskis2]

Great huntingdon disease talk about new therapy and treatments:
""""One of the most exciting applications of CRISPR is in the treatment of genetic diseases. By using CRISPR to make precise changes to DNA, scientists can potentially cure or prevent diseases caused by faulty genes. This includes diseases like sickle cell anemia, cystic fibrosis, and Huntington's disease."

https://khikeroplitabil.xyz/click.php?key=fcvw2wau7i71pohq6s91&action=1f81b9e4b3f8ebd70da9ef5840cc0aab&placement=17101632&campaign_id=709331&c=1XWmGnsRFipd2jvYz9YHSD1e4Os%3D

 

[Scottyskis2]

Teva Announces FDA Approval for Austedo-XR Last week, Teva Pharmaceuticals received FDA approval for Austedo XR for treatment of chorea in people with HD and people with Tardive Dyskenesia (TD). AUSTEDO® (deutetrabenazine) was initially approved by the FDA in April of 2017. This drug, called a VMAT-2 inhibitor, interferes with how dopamine messages are passed between neurons in the brain to reduce symptoms of chorea in people with HD. Austedo XR is an extended-release formulation of the same drug. This means that people prescribed Austedo will have the option of taking the drug only once per day instead of twice per day, which could make treatment adherence easier. To read more: https://www.tevausa.com/news-and-me...e-extended-release-tablets-a-new-once-daily-/

 

[Scottyskis2]

HDSA is proud to announce the 2023 Request for Proposals for the #HuntingtonsDisease Human Biology Project! This 1-2 year funding mechanism is open to researchers around the world, and provides up to $75,000 of annual support for research conducted in collaboration with HD clinics across the globe.

Learn more at http://hdsa.org/hd-research/hd-human-biology-project/

#LetsTalkAboutHD #HDSAFamily

 

[SteezyYeeter]

Not me now but I will get to this point with this fucken terrible illness
We in the same HD Facebook page
"""can people please pray for me I really hate this disease I can't walk and getting very hard to speak I can't understand myself""""

That is awful. I'm so sorry for you, I will keep you in my prayers.